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Registry Organizations and Operations
Exam Certification Questions and
Answers.
Annual Call for Data - Correct Ans: ✅ Central registries within NPCR submit cancer incidence data (no personal identifiers) to NPCR each year in January. Data is compiled and aggregate data is used by the American Cancer Society and the National Cancer Institute among other organizations. This population-based data is also used for research.
SEER stands for - Correct Ans: ✅ Surveillance Epidemiology, and End Results
SEER is managed & funded by - Correct Ans: ✅ NCI (National Cancer Institute)
SEER Purpose - Correct Ans: ✅ -Rec information from 10 populations
- Concerned maintly with 4 summary stages (in situ, local, regional, distant)
The National Cancer Act - Correct Ans: ✅ 1971
-Mandates the collection, analysis, and dissemination of data for use in the prevention, diagnosis, and treatment of cancer.
-Established SEER, first ca governing body
COC Standards Eligible for Commendation (8) - Correct Ans: ✅ 1. Each required member attends 50% of cancer committee meetings
- Required % of patients are accrued to clinical trials & the clinical trial representative reports clinical trial participation to cancer committee.
- All cancer registry staff must attend 1 cancer-related education activity each year
- Cancer committee must develop and disseminate a report of patient or program outcomes to the public each year.
- CAP protocols are followed to report the required data elements in 90% of the eligible cancer pathology reports each year.
- Oncology nursing care is provided by nurses with specialized knowledge and skills & evaluated every year.
- 90% of cases are abstracted within 6 months of the date of first contact
- Cases are annually submitted to the NCDB that were dx on 1/1/2003 or later.
NAACCR stands for - Correct Ans: ✅ North American Association of Central Cancer Registries
NAACCR purpose - Correct Ans: ✅ -Covers US, Canada, Mexico
-Made a standard data layout and definitions
- Created data dictionary
- used in software systems
Statistics - Correct Ans: ✅ the study of numbers which represents counts and/or measurements
Retrospective clinical trials - Correct Ans: ✅ (case control)
- looking back at exposure history after the disease occurred.
-the registry may provide research with a certain population of patients that fit the category
Prospective clinical trials - Correct Ans: ✅ (cohort)
-Looking forward from exposure to the later occurrence of disease
-begins collection at the present time for a specific period.
IACR - Correct Ans: ✅ - international association of cancer registries
- works to improve the quality of data on cancer incidence and mortality and comparability among registries.
-Affiliated with IARC (international agency for research on cancer)
IRB - Correct Ans: ✅ -Institutional Review Board
-committe in a health care facility whose purpose is to provide complete and adequate review of human research activities conducted and to protect the rights of human subects
Casefinding Standards - Correct Ans: ✅ NAACCR - 95% of expected cases occurring during that year should be reported within 18 months of the close of the dx year
NPCR - 90% of expected cases be included within 12mo of closing of that year.
Deterministic record linkage - Correct Ans: ✅ -uses a static or predefined set of rules to compare data. Rules are defined before the linkage begins.
-records must match exactly in certain fields
Probabilistic record linkage - Correct Ans: ✅ -algorithms that use fluid or dynamic relations between data items and takes into account various attributes of the data to increase the probability of a match.
-each component has a different weight to increase the probability
Geocoding - Correct Ans: ✅ the act of assigning geographic info to a cancer pt record.
A form of record linkage - linking the pt dx to the location
Death clearance - Correct Ans: ✅ -follow back
-Linking registered deaths in the population against the reported cancers in the population
Reportable by agreement - Correct Ans: ✅ benign or borderline cases that a facility's cancer committee has decided to collect because of local interest
-Evaluate cancer control activities
-Plan for future healthcare needs
NPCR is managed by - Correct Ans: ✅ The CDC
The Cancer Registries Amendment Act - Correct Ans: ✅ Law that esablished the NPCR in 1992, allowing the CDC to:
-Provide funds and assistance to enhance existing central registries or plan implementation in states that did not have an existing central registry
-Set standards for data completeness, timeliness and quality
-Develop model laws and regulations for states
-Establish a set of required data items & uniform reporting format
-Provide training and support to central registries
