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NCRA Study Guide CTR 2020: Registry
Organization, Operation & NCRA Study
Guide CTR 2025 : Data Quality
Assurance Examinations.
Population-based cancer (central) registry can do the following: -
Correct Ans: ✅ ◦ Determination of cancer patterns among populations
◦ Patients diagnosed in independent path. labs
◦ Patients treated in independent cancer centers
◦ Research into cause of cancer
◦ Patients from private clinics & hospices
◦ Exploration of trends in cancer care
◦ Improving patient care programs
◦ Monitoring/Exploration of cancer trends overtime
Population-based cancer (central) registry can do the following: -
Correct Ans: ✅ ◦ Death certificate info. from vital statistics registration system
◦ Patients diagnosed and/or treated for cancer at facility
◦ Creation of regional & state benchmarks for hospitals
◦ Advancing clinical, epidemiological, & health services research on cancer
◦ Active follow-up information on registered patients
◦ Guiding planning & evaluation of cancer control efforts to help prioritize health resource allocations
The organization(s) involved in developing uniform data standards
for hospital and population-based registries include - Correct Ans:
✅ North American Association of Central Cancer Registries (NAACCR)
Syntactic interoperability - Correct Ans: ✅ Data using the same coding system among two or more organizations
Semantic interoperability - Correct Ans: ✅ Sharing a common meaning of a data representation among all the organization
Tort - Correct Ans: ✅ Breach of confidentiality
Law that covers wrongful acts that result in harm to another person, such as invasion of privacy
Under what circumstances can confidential cancer registry data be
made available? - Correct Ans: ✅ To provide follow up information to an approved facility
Death clearance ensures that all persons with cancer on their death certificate are correctly ascertained by the central registry.
What registry collects information about all cancer patients in a
particular institution? - Correct Ans: ✅ Hospital based cancer registry
Hospital based cancer registry can do the following: - Correct Ans:
✅ ◦ Active follow-up information on registered patients
◦ Patients diagnosed and/or treated for cancer at particular facility
◦ Evaluating clinical care & hospital administration
◦ Providing advocacy & educational opportunities to cancer patients
◦ Improving patient care programs
Duty of care - Correct Ans: ✅ Socially defined standard of care for the protection of others against unreasonable risks
Population-based cancer (central) registry examples - Correct Ans:
✅ ◦ State registry (Texas Cancer Registry)
◦ Provincial, regional or territorial cancer registries
◦ National Program of Cancer Registries (NPCR)
◦ Surveillance, Epidemiology, and End Results (SEER)
What registry collects info. about all cancer patients who are
residents of a particular state/geographic area? - Correct Ans: ✅ Population-based cancer (central) registry
Specialty Registries examples - Correct Ans: ✅ ◦ Central Brain Tumor Registry of the United States (CBTRUS)
◦ Breast Cancer Surveillance Consortium (BCSC)
◦ Pediatric MDS Registry
◦ Cancer Genetics Network (CGN)
Specialty Registry can do the following: - Correct Ans: ✅ ◦ Patients who voluntarily self-enroll
◦ Only patients with certain familial cancers
◦ Only patients with a particular type of cancer
◦ Patients enrolled by physicians
◦ Advancing clinical, epidemiological, and health services research on cancer
◦ Gathering & disseminating epidemiologic data on specific type of cancer
◦ Providing advocacy & educational opportunities to cancer patients
◦ Research into the cause of cancer
Hospital and population-based cancer registries collect cancer data
to - Correct Ans: ✅ Be aggregated by a Federal agency
Which types of cancer registries can receive CoC approval for their
cancer programs? - Correct Ans: ✅ Hospital based cancer registry
St. Elsewhere cancer registry transmits encrypted confidential cancer data monthly to the state cancer registry. Encryption of data is a type
of - Correct Ans: ✅ Data security
You can share patient identifying data from the cancer registry with
who among these choices? - Correct Ans: ✅ Other hospital registries who are involved in that patients care.
Cancer Conference attendees if the patient is being presented.
State Central Registries that are including that patient in a special study for data analysis.
What term is used to describe a department that completes work for which it is unable to bill a patient and therefore brings no income
into the organization? - Correct Ans: ✅ Non-revenue generating
Operating budget - Correct Ans: ✅ ◦ Salaries ◦ Benefits ◦ Supplies ◦ Fixed costs
Revenue budget - Correct Ans: ✅ Grants, donations, fund-raising activities
Capital expense - Correct Ans: ✅ Major expenses like computers, furniture, and non-perishable items
Expense budget - Correct Ans: ✅ Wages are largest expenditure in cancer budget. Expenses might include software licensing and/or service agreements
The restriction of access, use, and disclosure of confidential patient
medical information is - Correct Ans: ✅ Privacy
What type of budget requires that every line item of a new budget be justified, even if those items were approved in a previous year's
budget? - Correct Ans: ✅ Zero-based budget
Requires that every line item of the budget be approved, rather than only changes to the budget from one year to the next
Prepared as if being done for the first time - Correct Ans: ✅ Zero- based budget
Budget-drafting process in which upper management makes key decisions about company expenditures without input from middle managers or lower-level employees
Prepared by top management - Correct Ans: ✅ Top-down budget
Prepared by the registry managers of all departments are combined to compute the financial resources needed for the entire
organization - Correct Ans: ✅ Bottom-up budget
Orders a person or organization to bring physical evidence before the
ordering authority or face punishment - Correct Ans: ✅ Subpoena duces tecum
Orders a person to testify before the ordering authority or face punishment. The subpoena can also request the testimony to be
given by phone or in person - Correct Ans: ✅ Subpoena ad testificandum
Which of the following is a permissible disclosure of confidential
patient information from the cancer registry? - Correct Ans: ✅ To another registry for follow-up purposes
What is a source of cancer incidence and survival data from population-based cancer registries covering approximately 34.6% of
U.S. population? - Correct Ans: ✅ NCI SEER Program
Medical data that are combined without patient identifiers are -
Correct Ans: ✅ Aggregate data
Accounting of disclosure (record of disclosure) - Correct Ans: ✅ Record (kept for recent 6 yrs) of who, what, when where and what purpose any PHI was disclosed w/o patient consent
Data set reliability refers to - Correct Ans: ✅ How likely different people will use the same code for a data item when reviewing the same source documents
Which of the following information must healthcare organizations
protect? - Correct Ans: ✅ ◦ Employee information
◦ Individually identifiable patient health information
◦ Information about the organization
Terrie Tumor Registrar Completes a productivity sheet at the end of
each day listing tasks completed that day. This is a form of - Correct
Ans: ✅ Time motion study
The use of a password to verify that a person is who they purport to
be before they are granted access to confidential data is: - Correct
Ans: ✅ User authentication
All of the state cancer registries in the United States are required to
submit their data to: - Correct Ans: ✅ Either CDC/NPCR or NCI/SEER
Caitlin Cancer Registrar is the cancer registry manager. She received a budget for the registry from the office of the facility's chief financial
officer. This type of budget is: - Correct Ans: ✅ Top-down budget
The ability for a cancer registry to incorporate electronic data from an external source into the registry and the ability for external
recipients to incorporate registry data for their use is called - Correct
Ans: ✅ Interoperability
What term is defined as a computer or device on a network that
manages network resources? - Correct Ans: ✅ Server
Firewall - Correct Ans: ✅ System designed to prevent unauthorized access to or from a private network
Local Area Network (LAN) - Correct Ans: ✅ Supplies networking capability to a group of computers in close proximity to each other, such as in an office building
What program or piece of code is loaded onto your computer without your knowledge and runs against your wishes after you run or open the malicious program?
Cannot be spread without a human action - Correct Ans: ✅ Virus
Worm - Correct Ans: ✅ program or algorithm that replicates itself over a computer network and usually performs malicious actions
capability to travel without any human action
Trojan Horse - Correct Ans: ✅ Destructive program that masquerades as a benign application
Standard data item - Correct Ans: ✅ Refers to a data item whose coding instructions, code values and definitions are shared among the registry organizations.
Data submittals - Correct Ans: ✅ Refers to the process of extracting data from the registry database system for submission to another entity (e.g., funding agency).
What type of HIPAA security safeguard is being adhered to when the procedures involve access to hardware and software being limited to properly authorized individuals, workstations not being located in high traffic areas and monitor screens not being in direct view of the
public? - Correct Ans: ✅ Physical safeguard
What type of HIPAA security safeguard is being adhered to when a covered entity adopts a written set of privacy procedures that address access authorization, establishment, modification, and termination; and when covered entities out-source some of their business processes to a third party, they require that their vendors also have a framework in place to comply with their HIPAA
requirements? - Correct Ans: ✅ Administrative safeguard
What type of HIPAA security safeguard is being adhered to when procedures are established to protect PHI transmitted electronically over open networks from being intercepted by anyone other than
the intended recipient? - Correct Ans: ✅ Technical safeguard
National Provider Identifier (NPI) to identify covered health care providers in standard transactions.
At a minimum, all population-based cancer registries are required to
identify cancer patients who are - Correct Ans: ✅ Residents of their catchment area at the time of diagnosis who were diagnosed and/or treated either inside or outside the catchment area.
A new standard data item for a cancer registry typically goes into
effect - Correct Ans: ✅ At the beginning of a diagnosis year for a central registry
A patient's medical record information - Correct Ans: ✅ Can be disclosed to state/central cancer registries without the consent of the patient.
Population-based central cancer registries may give hospitals in their
area information about - Correct Ans: ✅ follow-up, death clearance, and treatment received at another facility
The field that reflects the coding standard used for the stage fields in a NAACCR exchange record layout is an example of what type of data
item in a cancer registry? - Correct Ans: ✅ Record Identification
Categories used by NAACCR to classify data items - Correct Ans: ✅
- Record identification
- Stage/Prognostic Factors
- State/Requestor
- Cancer Identification
Stage/Prognostic Factors - Correct Ans: ✅ All fields associated with coding stage, tumor markers and secondary diagnoses
State/Requestor - Correct Ans: ✅ Data items that include optional registry specific or special use fields that are not in the standard NAACCR data dictionary but are maintained by the receiving registry when a data exchange is performed using the NAACCR record layout.
Continuity of data over time means that - Correct Ans: ✅ Mapping can be done between the historic data items and the new data items.
What term(s) describes the situation in which a hospital cancer registrar exploits the relationship between their hospital and an
outside consulting company for personal financial gain? - Correct
Ans: ✅ conflict of interest or duality of interest
Which hospitals are required to submit data to the state cancer
registry? - Correct Ans: ✅ Hospitals with or without CoC approved cancer programs
What expression(s) is used to describe the capability of different registries being able to read, write and exchange data via a common
set of exchange formats? - Correct Ans: ✅ Interoperability
What is the natural numbering system of a computer? - Correct Ans:
✅ Binary
Hard Disk Drive - Correct Ans: ✅ computer device that reads, writes, and stores digital data; part of central processing unit (CPU)
Modem - Correct Ans: ✅ device that allows computers to transfer data
Central Processing Unit (CPU) - Correct Ans: ✅ Brain of the computer that performs instructions defined by software
COBOL (Common Business Oriented Language) - Correct Ans: ✅ compiled English-like computer programming language
The population-based SEER cancer registries collect the following
information: - Correct Ans: ✅ - Patient, hospital and physician demographics
- Tumor information (e.g., site, histology, stage)
- First course of treatment
- Follow-up for vital status
Geocoding - Correct Ans: ✅ Process of assigning geographic information to a cancer patient record based on the place of usual residence
Quality control - Correct Ans: ✅ Planned set of activities to monitor quality; insures completeness and accuracy of case-finding, abstracting, coding, follow-up, reporting activities
Quality control activities in the cancer registry are performed to
evaluate: - Correct Ans: ✅ Registry data quality
Quality of registry operations
The Cancer registry quality control program does the following: -
Correct Ans: ✅ ◦Monitor activities in all areas of the registry
◦Establish uniform standards of quality
◦Provide communication and feedback
◦Collect and maintain data on data quality
◦Balance costs and benefits
Linking multiple records for the same primary cancer, linking records from other states, and linking pathology reports are all a part of the -
Correct Ans: ✅ record consolidation
Central Cancer Registry LNMOP annually performs case-finding audits at 20% of the reporting facilities in the state. The audits are
performed to evaluate - Correct Ans: ✅ Case incidence completeness
